“Attending the annual conference was more than an opportunity for our family to learn about TBRS. It connected us with other TBRS families and opened us up to a community that has been an incredible resource and support system!” Kacee Richter
Mother of child with TBRS

“As a family who had lived without a diagnosis for 18 years for our daughter Eve, attending our first TBRS conference was like gaining a new family. A family that really and truly understood the ins and outs of daily life as we had been living it."

“I felt like I had finally made it HOME! The amount of weight that was lifted from my shoulders was immense. The pieces of the puzzle finally fell into place.”

“The support and love that we have in this group is immeasurable. It truly was like finding friends and family from around the world we never knew we had!”