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The TBRS Community gathered for the weekend of October 18th – 20th, 2019 at The Rocking Horse Ranch in Highland, NY. People traveled from throughout The United States, Canada, Italy, and The UK to attend. Doctors and researchers from three prestigious institutions, St George’s Hospitals, Baylor College of Medicine, and Washington University, joined us. The presenters included Dr. Kate Tatton Brown, Dr. Harrison Gabel, Dr. Ayala Tovy, Dr. Amanda Smith, and Dr. Rachel Rau. They presented on a variety of topics, including the genetics of TBRS, mouse model research outcomes, TBRS natural history study results, epigenetics, and molecular studies. We had engaging open panel discussions, question and answer sessions, and held our first support group – which was a great success. Believe it or not, there was still lots of time to have fun as a group and explore the ranch. Families participated in horseback riding, karaoke, magic shows, swimming, mountain tubing, scavenger hunts, dancing, and enjoyed the all you can eat buffet. The self-serve ice cream was a welcomed added bonus for the kids. We plan on holding a TBRS Community Conference every year, so sign up for our newsletter to stay informed.
