Exciting news from the Overgrowth Syndromes Alliance!
The Overgrowth Syndromes Alliance (OSA), a collective effort between the TBRS Community and Malan Syndrome Foundation, uniting patient advocacy organizations and researchers to improve care and identify treatments for rare overgrowth–intellectual disability (OGID) syndromes.
We are thrilled to announce the release of a new informational brochure focused on overgrowth-intellectual disability (OGID) syndromes. This resource is dedicated to raising awareness for OGID syndromes, many of which are newly identified and require genetic testing to determine an underlying molecular cause.
We encourage TBRS Community families to download and share this valuable resource with your medical providers. Together, we can enhance understanding, provide better support, and improve care for affected individuals and their families.
