Weekly Research Updates! - October 27, 2023

  • Ciitizen
  • Patient Registry 2.0 – info on changes being made to the Registry
    • we are planning to include other DNMT3A variants
    • We are also getting feedback from those who have gone thru the Registry data to figure out what changes would be helpful for researchers!
  • Regional Coordinators program and Patient Advisory Committee
    • Please message me if you are interested in any of these opportunities ([email protected])
  • We are looking for cardiac and psychiatric specialists to join our Collaborative Research Network
  • Social media posts about research coming (like talking to researchers and recording those questions)
  • We are meeting with COMBINEDBrain to get information on all of the TBRS samples available in the Biorepository
  • Research Roundtable 3 will be happening soon! 
    • We will provide updates on this as they come!

Thanks everyone!

Kit Church, Research Coordinator

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