Events

Events

See upcoming and past events

03/13/22 - 03/13/22

Coffee with Kate: Meet with Dr. Kate...

This is an exclusive meeting with Dr. Kate Tatton-Brown, available to those who completed all of the surveys in the TBRS Community Patient Registry.

Coffee with Kate: Meet with Dr. Kate Tatton-Brown
03/01/22 - 04/30/22

2022 TBRS Community Challenge

The TBRS Community challenges YOU to participate in the TBRS Challenge - A FUNdraiser that Promotes Movement & Health!

2022 TBRS Community Challenge
02/26/22 - 02/26/22

TBRS and Leukemia Risk: Discussion and...

For families diagnosed with TBRS: Join us to discuss TBRS and leukemia risk with Dr. Rachel Rau

TBRS and Leukemia Risk: Discussion and question/answer session for families
02/25/22 - 02/25/22

TBRS Scientific Advisory Committee

Invite only event for TBRS Community Scientific Advisory Committee Members

TBRS Scientific Advisory Committee
02/19/22 - 02/19/22

TBRS Family Meet-Up: For newly...

Join us to network and learn at this virtual meeting.

TBRS Family Meet-Up: For newly diagnosed families to meet and learn about TBRS
09/24/21 - 09/24/21

3rd Annual Stryker Strong Golf...

The Glenn Family and Stryker Strong are holding their annual golf tournament to benefit the TBRS Communtiy. Thank you Glenn Family. Stryker Strong!

3rd Annual Stryker Strong Golf Tournament
09/24/21 - 09/27/21

2021 TBRS Community Family Conference

The TBRS Family Conference is where families meet with the world's top TBRS clinicians and researchers for the latest information & updates.

2021 TBRS Community Family Conference
09/18/21 - 09/18/21

Clubine-Badowski Family Cornhole...

Thanks to the Clubine-Badowski Family for hosting their 2nd Annual Cornhole Tournament, benefitting the TBRS Community!

Clubine-Badowski Family Cornhole Tournament - Benefitting the TBRS Community
09/12/21 - 09/12/21

Tin Roof BBQ Cornhole Tournament to...

Thank you to Tin Roof BBQ and The Richter-Webber Family for hosting the 2nd Annual Cornhole Tournament, benefitting the TBRS Community!

Tin Roof BBQ Cornhole Tournament to benefit the TBRS Community
11/12/20 - 11/13/20

Collaborative Research Network...

Scientists are clinicians will gather for the first meeting devoted to TBRS, DNMT3A, and related topics.

Collaborative Research Network Conference
10/25/20 - 10/25/20

Tin Roof BBQ Cornhole Tournament

Come for the competition, stay for the good food, and support a great cause!

Tin Roof BBQ Cornhole Tournament
05/31/20 - 05/29/20

Waterloo Junior High School T-Shirt...

Waterloo Junior High School honors Ayden Isaacs by creating a T-Shirt Campaign to raise awareness & funds for TBRS Community!

Waterloo Junior High School T-Shirt Fundraiser!
04/01/20 - 04/30/20

TBRS Community Exercise Challenge

TBRS kids and adults raise $11,500 while gaining some good exercise habits and confidence in their abilities!

TBRS Community Exercise Challenge
02/29/20 - 02/29/20

Tin Roof BBQ 2020 Rare Disease Day...

Day of Celebration, Awareness and Fundraising for Rare Disease Day and TBRS Community at Tin Roof BBQ!

Tin Roof BBQ 2020 Rare Disease Day Celebration
02/02/20 - 02/02/20

2020 Super Bowl Square Fundraiser

Super Bowl Square Fundraiser benefiting TBRS Community!

2020 Super Bowl Square Fundraiser
10/18/19 - 10/20/19

2019 TBRS Community USA Conference

A collaborative and productive meeting of families, top doctors and researchers from around the world who specialize in TBRS.

2019 TBRS Community USA Conference
07/14/19 - 07/14/19

Clubine-Badowski 2019 Cornhole...

Clubine-Badowski Cornhole Tournament in Kansas City to raise funds for TBRS Community!

Clubine-Badowski 2019 Cornhole Tournament
04/28/19 - 04/28/19

LaGrange, NY Walks for Autism Awareness!

Bringing Awareness for TBRS Community at Community wide Autism Awareness Walk!

LaGrange, NY Walks for Autism Awareness!
04/11/19 - 04/11/19

Stryker Strong 2019 Golf Tournament

Golf tournament benefiting Stryker Strong and TBRS Community!

Stryker Strong 2019 Golf Tournament
09/22/18 - 09/22/18

Colton's XXXtraordinarY Cause - TBRS...

Colton's XXXtraordinarY Cause selects Aevary Kiernan from TBRS Community as an honoree at 'A Rare Affair.'

Colton's XXXtraordinarY Cause - TBRS Community as Honoree at 'A Rare Affair'
09/21/18 - 09/23/18

2018 TBRS Community USA Conference

First Annual USA TBRS Conference in New York

2018 TBRS Community USA Conference
03/16/18 - 03/16/18

Costumes for a Cause

Gardner Elementary raised awareness and donations for TBRS Community by dressing up in costume in honor of Ayden Isaacs!

Costumes for a Cause