New Family Meet-Ups — Upcoming Dates!
The TBRS Community hosts quarterly virtual meet-ups for newly diagnosed and existing members of the community. This is an informal gathering to answer questions, talk
February 28, 2024
Events
See upcoming and past events
2023 TBRS Community Summit
The 2023 TBRS Community Summit is bringing our community back together for the first time since 2011. This year we are combining our Family Conference
August 7, 2023
2023 TBRS Exercise Challenge
The 2023 TBRS Community Summit is bringing our community back together for the first time since 2019! Event: Location: Date: 04/01/23 – 04/30/23 Duration: 30
April 1, 2023
2022 TBRS Family Conference
The 2022 TBRS Community Virtual Family Conference will feature talks from clinicians and researchers including Dr. Kate Tatton-Brown, Dr. Harrison Gabel, Dr. Serge McGraw, Dr.
October 7, 2022
TBRS Collaborative Research Network Conference, 2022
Scientists and clinicians will gather to discuss TBRS, DNMT3A, and related topics. Category: EventLocation: VirtualDate:
September 20, 2022
Kiernan Family Cornhole Tournament – Benefitting the TBRS Community
Food, Fun, Music, Wine, and Cornhole! All to benefit the TBRS Community! Category: EventLocation: Millbrook Vineyards and Winery, 26
August 14, 2022
Nutritional Support for People Diagnosed with TBRS, Sarada Bernstein MPH, RD
Discuss nutritional support strategies for people diagnosed with Tatton Brown Rahman Syndrome. Category: Event Location: Virtual Meeting – Link will be
August 8, 2022
TBRS Family Meet-Up: For newly diagnosed families to meet and learn about TBRS
Join us to network and learn at this virtual meeting. Category: EventLocation: Date: 07/06/22 – 07/06/22Duration:
July 6, 2022
Coffee with Kate: Meet with Dr. Kate Tatton-Brown
This is an exclusive meeting with Dr. Kate Tatton-Brown, available to those who completed all of the surveys in the TBRS Community Patient Registry. Category:
March 13, 2022
