Dr. Kate Tatton-Brown and Dr. Suzanne Alsters are studying obesity and eating behaviors in individuals with Tatton Brown Rahman Syndrome and are seeking participants. Their project involves an anonymous online survey and is open to any individual who has been diagnosed with TBRS. Participants are also asked to share the genetic variant from their genetic report and height and weight measurements of the person with TBRS.
Obesity and overeating are common concerns of TBRS families, and The TBRS Community is delighted that Dr. Tatton-Brown and Dr. Alsters are working to understand these conditions. It is critical that they receive participation from as many families as possible to advance the prospects of addressing these symptoms in the future.
To receive a link to the questionnaire or if you have any questions, please email survey administrator Jess: [email protected] or you can access the link directly from The TBRS Community’s private Facebook group.
