
Check out the OSA’s new brochure!
Exciting news from the Overgrowth Syndromes Alliance! The Overgrowth Syndromes Alliance (OSA), a collective effort between the TBRS Community and Malan Syndrome Foundation, uniting patient
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Exciting news from the Overgrowth Syndromes Alliance! The Overgrowth Syndromes Alliance (OSA), a collective effort between the TBRS Community and Malan Syndrome Foundation, uniting patient
Chelsea Spence joins the TBRS Community as the new Director of Development, bringing over thirteen years of dedicated experience in philanthropy, fundraising, and nonprofit management.
We need you! Celebrate Rare Disease Day by joining the TBRS Exercise Challenge as a participant In April 2024, the TBRS Community is raising $25,000
One of the most common questions we hear from patients, families, doctors, and researchers is, “How many people in the world have TBRS?” Count Me
The TBRS Community is spearheading an inspiring initiative to raise awareness and support for Tatton Brown Rahman Syndrome (TBRS) through the Random Acts of Kindness
Management & Surveillance Recommendations The TBRS Community would like to share a set of recommendations for initial clinical management and ongoing surveillance in TBRS. These