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Located: United States

Symptoms: Moderate cognitive disability, Kyphosis, ADHD, Episodic mood disorder, Autistic characteristics, Hyperextended joints, Vitamin deficiencies, Fatigue, Weight loss, Hyperthyroidism, Aortic root enlargement, Mild mitral regurgitation


Andrew weighed 8 lbs 10 oz and was induced on his due date. He is now 21 years old and is 6' 6" tall. When Andrew was born, he had the cord wrapped around his neck and his hands and feet were blue. He was very calm, and never cried or opened his eyes till the next day.

As Andrew grew, we noticed he wasn’t reaching all his child milestones of sitting up, crawling, walking, and talking like his two brothers. He had hypotonic muscle tone as a baby. Andrew was a very quiet child and seemed content just observing others interact and watching his brothers play instead of being involved. He participated in the Birth to 3 Program and then Early Childhood Special Education to help him with his delays. At around 6 years of age, Andrew showed obvious signs of not retaining basic learning concepts such as reading, writing, math, time, and money. Andrew today cannot master these tasks therefore he is classified as having a moderate cognitive disability.

Andrew also has attention deficit disorder and has bipolar tendencies. He takes medication to help with this. Andrew also displays behaviors that are on the autism spectrum even though he is very social with people. He paces at times throughout the day, has repetitious phrases and discussions, and is very sensitive to the cold and loud, crowded situations.

When Andrew got to be around 12, he started growing very fast. He was always tall, but we noticed his back was changing and curving. Within a year, he had severe kyphosis that needed to be corrected with spinal fusion surgery. He had the surgery at 14 years old and went from 6' 3" to 6' 5" after surgery. Andrew today continues to have neck tension from where his rods end in his back. Andrew is also very hypermobile in his knee joints and bows them back in his regular stance.

Andrew's TBRS diagnosis did not come about until he was 19 years of age. It explained all the challenges he was going through growing up. Today, Andrew is very healthy overall. Our biggest concern lately is dealing with his fatigue. Andrew has been deficient in iron, copper, vitamin D, calcium, and magnesium. He takes many supplements and works on eating the foods necessary to try to get these vitamins and minerals back into normal range. He also has low platelet counts.

Andrew is a very happy, social guy. His interests include sports, music, movies, and animals. He is active in Special Olympics softball and basketball, and loves to shoot hoops at the gym. He enjoys shopping, being around his Special Olympics friends and his animals on the farm, and playing with his Border Collie Chloe.

Written by Andrew’s mother.