After a fairly uneventful pregnancy, Olivia was born three weeks early. She was my largest baby at 8 lbs 9 oz. She immediately stopped breathing and went from purple to blue to grey. She was intubated and taken directly to the NICU. She was on oxygen for a few days and also had issues with feeding, regulating body temp, fever, and jaundice. After seven long days, she came home. She did have some issues with acid reflux as an infant, but the first time I noticed something was wrong was when she didn’t start smiling until about 13 weeks—a little more than double the time it took my other girls. She also didn’t hit other developmental milestones on time (supporting her head, siting up, bearing weight on feet). At 12 months, we contacted Early Intervention and she began to see physical, occupational, speech, and aqua therapists. She started butt scooting at 20 months and didn’t walk until 31 months and that was with both AFOs and a walker. Aside from her gross motor delays, she also experienced fine motor and speech delays, seizures, shudder attacks, tremors, heat intolerance, and sleep apnea, among other things. We saw many doctors over the last four years, including neurologists, geneticists, developmental specialists, orthopedics, etc. We received diagnoses such as developmental delay, hypermobility, benign congenital hypotonia (which basically meant they had no idea. Hypotonia is a symptom not a diagnosis). After many tests including MRIs, EEGs, and sleep studies, we decided to take her to Boston Children’s Hospital to their Hypotonia Clinic for answers. It was there