We are excited to announce that Jill Kiernan, the Executive Director of the TBRS Community, was recently featured as a guest on the esteemed podcast, “ABCs of Disability Planning.” In this insightful episode, Jill delved into the patient and family experience of living with Tatton Brown Rahman Syndrome, shedding light on the challenges and triumphs associated with this rare disorder.
Jill Kiernan brought her wealth of knowledge and personal experiences to the conversation, offering invaluable insights into navigating life with TBRS. From discussing the unique medical needs and daily hurdles faced by individuals with TBRS to highlighting the importance of community support and advocacy, Jill provided a comprehensive overview that resonates deeply with patients and families alike.
The “ABCs of Disability Planning” podcast serves as a platform for meaningful discussions surrounding various disabilities and rare conditions, aiming to educate and empower individuals and families. Jill’s participation not only raises awareness about TBRS but also amplifies the voices of those affected by this condition, fostering understanding and solidarity within the community.
To listen to Jill Kiernan’s episode on the “ABCs of Disability Planning” podcast, visit their website or search your podcast platform for the episode titled Meet.Support.Advance. Raising awareness of another Rare Disease – TBRS Community.
