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The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and their impact on the lives of patients and their families. The owners of Tin Roof BBQ‘s grandson, Lucas, was diagnosed with Tatton Brown Rahman Syndrome in March 2017. To bring awareness to Rare Disease Day and TBRS Community, Tin Roof BBQ celebrated the day all day! Tin Roof Loves & Supports All! A portion of the Full Day Sales was donated to TBRS Community. In addition to bringing awareness to Tatton Brown Rahman Syndrome, Adam Parsons, a beloved person with TBRS, was honored as he passed away in July 2019.
