Hey everyone! I hope everyone has had a great week. Here are some TBRS Community updates and reminders for this week:

• Looking for volunteers to translate TBRS Community materials!

• • • As a part of our global initiative for TBRS, we are looking for volunteers to translate TBRS materials, like:
      • TBRS Community New Family Welcome Packet
      • Count Me In for TBRS
      • Patient Priority Survey
    • Having these materials in other languages will increase accessibility for many patients and families with TBRS worldwide!
    • We welcome translations in any language, though our largest focuses include:
      • French
      • German
      • Chinese
    • If you are available to translate any TBRS Community resource into another language, please consider volunteering! Reach out to [email protected]!

• EVENT: Halloween Social – October 19, 2024

• • • We are hosting a Halloween Social on Saturday, October 19 from 12-1pm ET. 
      • This meeting will be a fun opportunity for diagnosed individuals and families to play games and have fun! 
    • We are also looking for volunteers for this social, as well as future events. Many thanks to Jane Hatton for organizing this event, but she could still use some help!
      • If you are interested in volunteering for this or any future socials, please reach out to Jane at [email protected]. 
    • All are welcome to attend. Halloween costumes are encouraged, but not required. Come ready to have some spooky fun!
      • Zoom link: https://us02web.zoom.us/j/85713970693…
      • Code: 232600

• EVENT: TBRS Friends and Family Support Group – October 26, 2024

• • This event will take place Saturday, October 26, 2024 at 3:00 PM Eastern Time via Zoom
    • Here is the link to join: https://us02web.zoom.us/j/7181674734?omn=87976765302
  • The TBRS Community offers a monthly Friends and Family Support Group via Zoom. Families from all around the world can participate. We create a safe place to share thoughts, feelings, concerns, and emotions without judgment. The meeting seems to take a different shape every time we gather—sometimes we focus on sharing resources or experiences, but we always seek to make everyone feel comfortable and supported. 
  • Any parents or caregivers of someone diagnosed with TBRS are welcome. 

I’ll be out of the office next week, but will be back on Monday, October 21. Thank you, and I hope you have a great couple of weeks.

Kit Church, CARE Manager