Hello everyone! I hope you’re having a great week! Here are some TBRS Community updates and reminders for this week:

• (New) Opportunities to donate to the Biorepository

• • • With the growing interest in our samples, we will be needing more patient donations soon!
      • The TBRS Biorepository is a collection of patient blood samples and other tissues that are readily accessible for research.
    •  Below are the dates for upcoming rare disease conferences where you can donate to the Biorepository:
      • September 25-28 – Atlanta, GA
      • September 29 – Kansas City, MO 
      • November 11 – Nashville, TN
      • December 5-6 – Los Angeles, CA 
    • If you are interested in donating to the TBRS Biorepository at any of these locations, please contact [email protected]. 

• EVENT: The Clubine Family TBRS Cornhole Tournament – Sept 14, 2024

• • • The Clubine family is hosting a lively Cornhole Tournament at Tumbleweed Bar and Grill to raise funds for the TBRS Community!
    • Event details:
      • Date: Saturday, September 14, 2024
      • Location: Tumbleweed Bar and Grill, 615 E Main St, Gardner, KS, USA
      • The event will include a cornhole tournament, as well as a silent auction and raffle (listed on the Tumbleweed Bar and Grill Facebook page)!
    • Click here to donate and/or sign up!

• EVENT: Special Education Support Group – Sept 16, 2024

• • • This event will take place Monday, September 16, 2024 at 7:00 PM Eastern Time via Zoom
      • Here is the link to join: https://us02web.zoom.us/j/86954328113 
    • The TBRS Community is hosting a Special Education Support Group via Zoom. All are welcome to participate.
    • This meeting will allows families to discuss and support each other with struggles and successes concerning the special education system. Families at any point in their special education journey are encouraged to join.

• REMINDER: Have a Round for Tatton Brown! – Sept 21, 2024

• • • Have a Round for Tatton Brown is a fundraiser event in support of the TBRS Community, hosted by Zoe and Michael Wisnoski. This event is back for its second year! 
    • Event details:
      • Date: Saturday, September 21, 2024
      • Location: France 44 in Minneapolis, MN, USA 
      • The event will include wine tasting, cocktail tasting, appetizers, and a silent auction!
    • Click here to sign up!

• EVENT: TBRS Friends and Family Support Group – Sept 23, 2024

• • • This event will take place Monday, September 23, 2024 at 7:00 PM Eastern Time via Zoom
      • Here is the link to join: https://us02web.zoom.us/j/7181674734?omn=85034496409 
    • The TBRS Community offers a monthly Friends and Family Support Group via Zoom. Families from all around the world can participate. We create a safe place to share thoughts, feelings, concerns, and emotions without judgment. The meeting seems to take a different shape every time we gather—sometimes we focus on sharing resources or experiences, but we always seek to make everyone feel comfortable and supported. 
    • Any parents or caregivers of someone diagnosed with TBRS are welcome. 

• EVENT: 6th Annual Stryker Strong / TBRS Golf Tournament – Sept 27, 2024

• • The Stryker Strong Golf Tournament is an annual event that aims to raise awareness of TBRS. All the proceeds from the event will benefit Stryker Strong, the TBRS Community, Anoxic Brain Injury Research, and various other local families and charities.
  • Event details:
    • Date: Friday, September 27, 2024
    • Location: Bent Brook Golf Course, Bessemer, AL, USA
    • Time: Shotgun Start 8 AM & 1 PM
  • Click here for more information!

Thank you, and I hope you have a great weekend!

Kit Church, CARE Manager