We are thrilled to announce the release of our first-ever Impact Report, a comprehensive look at the progress we’ve made together as a community. This special edition covers multiple years of our work, highlighting our research agenda, funded projects, collaboration with the Overgrowth Syndromes Alliance, accomplishments during the CZI Rare As One grant, and our vision for the future. It also includes a transparent breakdown of our financials and a recap of our fundraising efforts.
This report is a testament to the power of patient-driven research and the incredible support of families, researchers, and advocates. Thank you for being a part of our journey—your support drives real change for individuals and families affected by TBRS!