Author name: tbrsadm

2018 TBRS Community USA Conference

First Annual USA TBRS Conference in New York

Category:      Event
Location:    Highland, NY
Date:             09/21/18 – 09/23/18
Duration:        3 Days
Time:              7:00 PM – 7:00 PM (EST)

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TBRS Community hosted its very first annual USA conference for families and loved ones diagnosed with Tatton Brown Rahman Syndrome.  The conference was held at The Rocking Horse Ranch, in Highland, New York from September 21-23, 2018.  The mission of the conference was to enable families to have community, while learning about TBRS and getting to meet from Dr. Tatton-Brown herself.

The event was a success with 21 families attending the conference.  Most stayed onsite at The Rocking Horse Ranch and enjoyed the beautiful grounds and countless activities, while a few came in for the day on Saturday to attend the conference.

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Costumes for a Cause

Gardner Elementary raised awareness and donations for TBRS Community by dressing up in costume in honor of Ayden Isaacs!

Category:      Event
Location:    Waterloo, Illinois
Date:             03/16/18 – 03/16/18
Duration:        2 Days
Time:              3:00 PM – 10:00 PM (EST)

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Adyen Isaacs was diagnosed with TBRS in April of 2015. Gardner Elementary, where Adyen attended, honored him by raising awareness for Tatton Brown Rahman Syndrome and funds for The TBRS Community by allowing the staff and students to give $1 to dress in costume. As Ayden’s favorite holiday is Halloween this was a perfect celebration!

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