News

Stay up to date and informed

TBRS Community Offers Multiple Opportunities to Participate in Research

Engage in Tatton Brown Rahman Syndrome (TBRS) research and make a meaningful impact. By participating in research efforts, you play a pivotal role in advancing our understanding of TBRS, developing surveillance guidelines, and finding treatment options. Each participant adds to our knowledge, illuminating the path towards a brighter future for those affected by TBRS. Together, we can inspire progress and provide hope to TBRS families. Please see the attached PDF for more information or email [email protected] with questions.

Stay Informed

Get Our Newsletter

Sign up to receive updates on news, events, and research

Translate »
Scroll to Top