The Glenn Family and Stryker Strong are holding their annual golf tournament to benefit the TBRS Communtiy. Thank you Glenn Family. Stryker Strong!
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Contact [email protected] for registration and volunteer information.
3rd Annual Stryker Strong Golf Tournament Read More »
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TBRS Community is near and dear to the Clubine and Badowski family as their daughter, Addisyn, was diagnosed with Tatton Brown Rahman Syndrome in 2018. The Clubine and Badowski family hosted a Cornhole Tournament in Kansas City, Kansas to raise funds for TBRS Community. 42 teams registered to play in the event, and Terra organized wonderful raffle baskets to raise additional funds. The Cornhole Tournament was a huge success, raising $7,200 for TBRS Community!
Clubine-Badowski 2019 Cornhole Tournament Read More »
Thanks to the Clubine-Badowski Family for hosting their 2nd Annual Cornhole Tournament, benefitting the TBRS Community!
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Contact [email protected] or [email protected] to register, donate, or volunteer.
Clubine-Badowski Family Cornhole Tournament – Benefitting the TBRS Community Read More »
Thank you to Tin Roof BBQ and The Richter-Webber Family for hosting the 2nd Annual Cornhole Tournament, benefitting the TBRS Community!
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Contact [email protected] to register, donate, or volunteer.
Tin Roof BBQ Cornhole Tournament to benefit the TBRS Community Read More »
Dr. Kate Tatton-Brown and Dr. Suzanne Alsters are studying obesity and eating behaviors in individuals with Tatton Brown Rahman Syndrome and are seeking participants. Their project involves an anonymous online survey and is open to any individual who has been diagnosed with TBRS. Participants are also asked to share the genetic variant from their genetic report and height and weight measurements of the person with TBRS.
Obesity and overeating are common concerns of TBRS families, and The TBRS Community is delighted that Dr. Tatton-Brown and Dr. Alsters are working to understand these conditions. It is critical that they receive participation from as many families as possible to advance the prospects of addressing these symptoms in the future.
To receive a link to the questionnaire or if you have any questions, please email survey administrator Jess: [email protected] or you can access the link directly from The TBRS Community’s private Facebook group.
Join a study on obesity in TBRS Read More »
Applications for the Bridge to Independent Award Program through the Simons Foundation Autism Research Initiative (SFARI) are open. The grant provides $495,000 in funding over three years for researchers just beginning their professorships. The program is open to scientists in the US and Canada who already study autism or are seeking to launch research projects on autism. Learn more here.
Funding for early-career autism researchers Read More »
