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News & Updates

Stay connected to what’s happening across the TBRS Community.

This is your go-to spot for the latest news, research announcements, community stories, blog posts, press features, and event updates.Whether it’s scientific breakthroughs, family highlights, or upcoming programs, we’ll keep you in the loop.

2019 TBRS Community USA Conference
2019-10-18

2019 TBRS Community USA Conference

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Tin Roof BBQ 2020 Rare Disease Day Celebration
2020-02-29

Tin Roof BBQ 2020 Rare Disease Day Celebration

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TBRS Community Exercise Challenge
2020-04-01

TBRS Community Exercise Challenge

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2020 Super Bowl Square Fundraiser
2020-02-02

2020 Super Bowl Square Fundraiser

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Collaborative Research Network Conference
2020-11-12

Collaborative Research Network Conference

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2021 TBRS Community Family Conference
2021-09-24

2021 TBRS Community Family Conference

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Tin Roof BBQ Cornhole Tournament to benefit the TBRS Community
2021-09-12

Tin Roof BBQ Cornhole Tournament to benefit the TBRS Community

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TBRS Scientific Advisory Committee
2022-02-25

TBRS Scientific Advisory Committee

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