Celebrating Strength, Sharing Hope

Every TBRS story is different—and every one is powerful.This page is a space for our community to share lived experiences: the moments of uncertainty, the breakthroughs, the challenges, and the joy. Whether you’re a parent, sibling, grandparent, or individual living with TBRS, your story matters. By sharing it, you help others feel less alone and more connected.

Together, these stories help us better understand TBRS, spread awareness, and strengthen the bonds that make this community so special.