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News & Updates

Stay connected to what’s happening across the TBRS Community.

This is your go-to spot for the latest news, research announcements, community stories, blog posts, press features, and event updates. Whether it’s scientific breakthroughs, family highlights, or upcoming programs, we’ll keep you in the loop.

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes
2026-10-06

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes

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Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research
2026-10-06

Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research

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Advancing Care, Knowledge, and Connection Through Clinical Education
2026-10-06

Advancing Care, Knowledge, and Connection Through Clinical Education

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Advancements in Immunology Research and Remembering Dr. Dan Kennedy II
2026-09-02

Advancements in Immunology Research and Remembering Dr. Dan Kennedy II

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TBRS Community Support & Social Groups
08/26/2026 - 08/29/2026

TBRS Community Support & Social Groups

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Upcoming Family Fundraisers Supporting the TBRS Community
09/18/2026 - 09/26/2026

Upcoming Family Fundraisers Supporting the TBRS Community

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Progress Through Community -- TBRS Community 2025 Annual Report Now Available!
2026-06-11

Progress Through Community -- TBRS Community 2025 Annual Report Now Available!

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Grant Used to Advance Care, Knowledge, and Connection Through Clinical Education
2025-12-19

Grant Used to Advance Care, Knowledge, and Connection Through Clinical Education

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