TBRS Community Support & Social Groups

Connection is such an important part of our community and we’re glad to offer several recurring virtual groups where families, caregivers, and loved ones can come together, share, and support one another.

Below are the next upcoming dates for each group. All groups are recurring, and additional dates can always be found on our Events Calendar.

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TBRS Littles Support Group

When: Wednesday, August 26, 2026, 10:00–11:00 AM EDT
Click here to register!

The TBRS Littles Support Group is designed for parents and caregivers of children with TBRS who are 6 years old or younger. This group offers a space to connect with others navigating early childhood, share experiences, ask questions, and learn from one another.

Conversations are supportive and informal, with a focus on the unique joys and challenges of raising young children with TBRS.

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TBRS Family & Friends Support Group

When: Saturday, August 29, 2026, 3:00–4:00 PM EDT
Click here for information!

Our monthly Family & Friends Support Group brings together caregivers from around the world. We aim to create a safe, welcoming space to share thoughts, feelings, concerns, and experiences—without judgment.

Each meeting takes a slightly different shape depending on who joins. Sometimes we focus on sharing resources, and other times we simply listen and connect. All parents and caregivers of someone diagnosed with TBRS are welcome.

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TBRS Dads Support Group

When: TBD

Our TBRS Dads Support Group is a space specifically for fathers and father figures of individuals with TBRS to connect with one another. This group offers an opportunity to share experiences, ask questions, and build community with others who understand the unique challenges and joys of supporting a loved one with TBRS.

Conversations are informal, supportive, and shaped by the needs of those who attend.

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TBRS Social Group

When: TBD

Our TBRS Social Group is a chance to relax, have fun, and connect in a more casual setting. Individuals with TBRS, siblings, friends, and family members are all welcome to join!

We’ll gather virtually for an hour of laughter, connection, and interactive games—like guessing games and other lighthearted activities.

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We hope you’ll join us for one (or more!) of these gatherings. Whether you’re looking for support, connection, or just a chance to unwind with others who understand, there’s a place for you here.

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