Jill Kiernan

Executive Director and Founder, TBRS Community

Jill is the Founder and Executive Director of the Tatton Brown Rahman Syndrome Community and Co-Founder of the Overgrowth Syndromes Alliance. She leads efforts to unite families, clinicians, and researchers to drive progress in care and research for rare overgrowth and neurodevelopmental disorders. Jill is an advocate for patient-led, cross-disease collaboration that accelerates scientific discovery and strengthens the rare disease community as a whole. She is also a TBRS Mom, which means she keeps the families at the center of all the work she does at the TBRS Community.