Celebrate Rare Disease Day by joining the TBRS Exercise Challenge as a participant

We need you! Celebrate Rare Disease Day by joining the TBRS Exercise Challenge as a participantIn April 2024, the TBRS Community is raising $25,000 to accelerate the TBRS patient registry and drive treatments and a cure for TBRS.The TBRS Challenge is a “Move-A-Thon” that raises money for TBRS while promoting a healthy lifestyle. Show your support - become a participant! Create your own team and promise to exercise for the month of April. Ask your friends and family to pledge their support by donating. Participants can choose what type of exercise they will do.Your participation will help us expand the TBRS Patient Registry and get valuable patient data into the hands of our scientists and clinicians. By doing so, clinicians around the world will finally understand the symptoms associated with TBRS, create appropriate surveillance and treatment guidelines, and move the needle forward on developing treatment options for people affected by TBRS. We will also be able to identify more patients with TBRS, and provide proper support and care.To start your own fundraising challenge page, visit the TBRS Exercise Challenge page. Scroll down a little and you will click on either “Fundraise” or “Join a Team” buttons. In just a few short steps you'll be able to set up your personal fundraising page.We aim to put the fun in fundraising! We will host a few friendly challenges throughout the month of April to rally our fundraising community. Be sure to pay attention to your emails throughout the month!This fundraiser was thought up by our very own, Ashley Hatton! Thanks Ashley. You're a true inspiration! Have questions? Need help setting up your page? We are here to help. Email kit@tbrsyndrome.org