Introducing the TBRS Community Blog!

Introducing the TBRS Community Blog!

We are thrilled to announce the launch of a new and exciting feature on our website - the TBRS Community Blog! This blog has been created to keep our community informed about TBRS Community research efforts, new resources, and upcoming eventsEvery week, our Research Coordinator, Kit Church, will provide you with updates on ongoing projects, breakthroughs, and events within the TBRS Community. New blog posts are added every Friday. Whether you're a patient or family member seeking the latest information, or a scientist eager to stay in the loop, our blog aims to bridge the gap between research and community support.To access the blog, click here!

Featured News

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes
October 6, 2026

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes

Read More
Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research
October 6, 2026

Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research

Read More
Advancing Care, Knowledge, and Connection Through Clinical Education
October 6, 2026

Advancing Care, Knowledge, and Connection Through Clinical Education

Read More
Monthly Updates! - September 2026
October 6, 2026

Monthly Updates! - September 2026

Read More

Stay Connected & Informed

Sign up to receive research updates, community news, and event invitations.

* please select at least one option before submitting
Thank you!

Your submission has been received!
Oops! Something went wrong while submitting the form.