November 7, 2025
The TBRS Exercise Challenge is more than just a fundraiser—it’s a movement that brings our community together to make a real difference in the lives of people with Tatton Brown Rahman Syndrome (TBRS). Launched in 2020 by Ashley Hatton, a person with TBRS, this annual event encourages participants to set personal fitness goals while raising money to fund essential programs for the TBRS Community.
Why It Matters
Every dollar raised through the TBRS Exercise Challenge helps fund education, support, and research. This year, we’re focused on two critical initiatives:
- Creating a clinical series to educate doctors and families on best practices for TBRS care.
- Formalizing surveillance and treatment guidelines to improve medical care and outcomes for individuals with TBRS.
With over 200 participants in our patient registry, we’re learning more than ever before about the medical needs of individuals with TBRS—and your support helps turn that knowledge into action.
How to Get Involved
- Set Your Challenge: Choose an activity—walk, run, swim, cycle, dance, or any movement that gets you moving!
- Fundraise: Create a personal fundraising page and ask friends, family, and coworkers to support your efforts.
- Share Your Journey: Post your progress on social media with #TBRSExerciseChallenge to inspire others.
- Donate: Not ready to participate? You can still make a difference by donating to the cause.
Make an Impact Today!
Every step, pedal, and jump brings us closer to a brighter future for those living with TBRS. Join the movement, challenge yourself, and be part of something bigger!
© TBRSyndrome.org. This website is not intended for medical diagnostic use, or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of The Tatton Brown Rahman Syndrome Community.