New Family Welcome Packet - A Great Resource for the Community

New Family Welcome Packet - A Great Resource for the Community

The TBRS Community has designed a New Family Welcome Packet that contains all of the important information on participation in research, community programs, and current knowledge on TBRS.

This packet is designed to support the newly diagnosed, but contains important information for all families in the TBRS Community!

This resource is currently available in English and Spanish (Japanese coming soon), and we are always looking for more translations. Click the links below to download in your language!

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English

日本語

Español

Nederlands

Featured News

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes
October 6, 2026

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes

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Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research
October 6, 2026

Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research

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Advancing Care, Knowledge, and Connection Through Clinical Education
October 6, 2026

Advancing Care, Knowledge, and Connection Through Clinical Education

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Monthly Updates! - September 2026
October 6, 2026

Monthly Updates! - September 2026

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