New Position: Community and Research Engagement (CARE) Manager

We are excited to announce that Kit Church, previously our Research Coordinator, has had a recent position change to:

Community and Research Engagement (CARE) Manager for the TBRS Community!

Kit's work with the TBRS Community has grown and evolved over the years and this new title better describes her position. Kit communicates with families, clinicians, and researchers. She identifies gaps in support for the global TBRS Community and addresses those gaps with new programming and resources. She creates materials to educate researchers and families on the importance of research involvement, and so much more!

Jill Kiernan, TBRS Community's Executive Director says "Kit's contributions are invaluable to our community. She not only develops incredible programs and maintains strong connections with our families and scientists, but she has also become an integral member of the TBRS Community Family. Her love for the families in our community shines through in her work, driving everything she does."

"Thanks to the TBRS Community for providing me with this opportunity, and thank you to everyone for allowing me into your community!" Kit said. "I will do my best in my new role to provide support for all members of our global community, as well as continue to support the development of our research network. If you have any suggestions for programs that you would like to see, please reach out at kit@tbrsyndrome.org!"