June 18, 2026
Engage in Tatton Brown Rahman Syndrome (TBRS) research and make a meaningful impact. By participating in research efforts, you play a pivotal role in advancing our understanding of TBRS, developing surveillance guidelines, and finding treatment options. Each participant adds to our knowledge, illuminating the path towards a brighter future for those affected by TBRS. Together, we can inspire progress and provide hope to TBRS families. Please see the attached PDF for more information or email kit@tbrsyndrome.org with questions.
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