TBRS Community's Impact Report: A Look at How Far We've Come

TBRS Community's Impact Report: A Look at How Far We've Come

We are thrilled to announce the release of our first-ever Impact Report, a comprehensive look at the progress we've made together as a community. This special edition covers multiple years of our work, highlighting our research agenda, funded projects, collaboration with the Overgrowth Syndromes Alliance, accomplishments during the CZI Rare As One grant, and our vision for the future. It also includes a transparent breakdown of our financials and a recap of our fundraising efforts.This report is a testament to the power of patient-driven research and the incredible support of families, researchers, and advocates. Thank you for being a part of our journey—your support drives real change for individuals and families affected by TBRS!Click here to view our first Impact Report

Featured News

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes
October 6, 2026

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes

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Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research
October 6, 2026

Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research

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Advancing Care, Knowledge, and Connection Through Clinical Education
October 6, 2026

Advancing Care, Knowledge, and Connection Through Clinical Education

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Monthly Updates! - September 2026
October 6, 2026

Monthly Updates! - September 2026

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