February 20, 2026
The National Organization for Rare Disorders (NORD) has welcomed The TBRS Community as a member, joining 300 other patient organizations. NORD is a leading advocacy group for the rare disease community and provides funding for research, financial support for caregivers, and representation on Capitol Hill.
© TBRSyndrome.org. This website is not intended for medical diagnostic use, or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of The Tatton Brown Rahman Syndrome Community.