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New Family Meet-Ups -- Upcoming Dates!

New Family Meet-Ups -- Upcoming Dates!

The TBRS Community hosts quarterly virtual meet-ups for newly diagnosed and existing members of the community. This is an informal gathering to answer questions, talk about current TBRS-related research, review what the TBRS Community has to offer, and simply get to know each other. We have several New Family Meet-Ups scheduled for 2024!

For more information on New Family Meet-Ups and other events, subscribe to our calender here.

Featured News

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes
October 6, 2026

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes

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Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research
October 6, 2026

Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research

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Advancing Care, Knowledge, and Connection Through Clinical Education
October 6, 2026

Advancing Care, Knowledge, and Connection Through Clinical Education

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Monthly Updates! - September 2026
October 6, 2026

Monthly Updates! - September 2026

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