Weekly Updates! - August 14, 2026

Hey all! Just a few, quick updates this week:

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• Upcoming events: Support groups
  
  • TBRS Friends and Family Support Group
    
    • This event will take place Saturday, August 29, 2026 at 3:00 PM Eastern Time via Zoom
    • https://us02web.zoom.us/j/86507159281
  • TBRS Dads Support Group
    
    • This event will take place Thursday, August 20, 2026 at 8:00 PM Eastern Time via Zoom
    • https://us02web.zoom.us/j/84603892765
  • TBRS Littles Support Group
    
    • This event will take place Wednesday, August 26, 2026 at 10:00 AM Eastern Time via Zoom
    • https://us02web.zoom.us/j/82157473187

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• REMINDER: Did You Contribute to the TBRS Biorepository? - you might have pending tasks!
  
  • If you contributed a sample to the TBRS Biorepository, please log in to Matrix and complete the Vineland survey.
    
    • You can access Matrix here: https://combinedbrain.acrossmatrix.com/
  • We know the Vineland is a long and involved survey, and we really appreciate you taking the time to complete it or upload a recent copy!
    
    • If you have already completed a Vineland in the last 6 months, you can upload a copy instead of completing the survey again.
  • This information helps researchers better understand how TBRS affects people in their everyday lives. 

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Thanks! Please reach out to me with any questions at kit@tbrsyndrome.org. Happy weekend!

Kit Minor, CARE Manager