Weekly Updates! - December 13, 2024

Weekly Updates! - December 13, 2024

Hey everyone! I hope everyone has had a great week. Here are some updates and reminders from the TBRS Community:

• THIS WEEKEND: TBRS Friends and Family Support Group - December 15, 2024
  • This event will take place Sunday, December 15, 2024 at 2:00 PM Eastern Time via Zoom
    • Here is the link to join: https://us02web.zoom.us/j/7181674734?omn=89899750945
  • The TBRS Community offers a monthly Friends and Family Support Group via Zoom. Families from all around the world can participate. We create a safe place to share thoughts, feelings, concerns, and emotions without judgment. The meeting seems to take a different shape every time we gather—sometimes we focus on sharing resources or experiences, but we always seek to make everyone feel comfortable and supported.
    • Any parents or caregivers of someone diagnosed with TBRS are welcome.

• REMINDER: Help us launch the TBRS Drug Discovery and Repurposing Project
  • Our goal is to raise $30,000 by December 31 to launch this critical research and bring real solutions to families now
    • Your support will fund a drug discovery and repurposing project to identify existing FDA-approved or new drugs that could help TBRS patients.
    • Our dedicated research team is ready to evaluate these drugs and make them accessible to families in need.
  • Join Us! Every dollar helps us move closer to life-changing solutions.
    • Click here to donate by Dec 31!

• REMINDER: Show your support this giving season
  • Leave a lasting legacy with the Dorothy G. Hatton Legacy Society
    • Join the Dorothy G. Hatton Legacy Society, named in honor of a cherished TBRS grandma who was the first person to ever include the TBRS Community in her planned giving.
    • Click here to learn how you can contribute!
  • Show your support as a TBRS GEM
    • Become a TBRS GEM (Giver Every Month)!
    • By becoming a recurring donor, you have the chance to make a significant impact in the lives of those who face TBRS by funding crucial research, providing vital resources, and ultimately, improving their quality
    • Learn more about becoming a TBRS GEM here!

Thanks and I hope you have a great weekend!

Kit Church, CARE Manager