Weekly Updates! - December 20, 2024

Weekly Updates! - December 20, 2024

Weekly Updates! - December 20, 2024

Hey everyone! I hope everyone has had a great week. Here are some updates and reminders from the TBRS Community:

  • Thank you to all our donors!
    • As the year is ending, we would like to say a very special thank you to all of our donors. Your support makes everything we can provide possible!
    • Click here to view our “Get Involved” page, now updated to include a thank you to our donors.
  • REMINDER: Help us launch the TBRS Drug Discovery and Repurposing Project
    • Our goal is to raise $30,000 by December 31 to launch this critical research and bring real solutions to families now
      • Your support will fund a drug discovery and repurposing project to identify existing FDA-approved or new drugs that could help TBRS patients.
      • Our dedicated research team is ready to evaluate these drugs and make them accessible to families in need.
    • We’ve already raised $26,670! We’re so close, but we need your help to reach our goal!

Thanks! I hope you have a great weekend, and Happy Holidays!

Kit Church, CARE Manager

Featured News

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes
October 6, 2026

Collaborating with Stanford Medicine to Increase the Rate of Diagnosis for TBRS and Overgrowth Syndromes

Read More
Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research
October 6, 2026

Big News for the TBRS Community: $75,000 Grant to Advance Gene Therapy Research

Read More
Advancing Care, Knowledge, and Connection Through Clinical Education
October 6, 2026

Advancing Care, Knowledge, and Connection Through Clinical Education

Read More
Monthly Updates! - September 2026
October 6, 2026

Monthly Updates! - September 2026

Read More

Stay Connected & Informed

Sign up to receive research updates, community news, and event invitations.

* please select at least one option before submitting
Thank you!

Your submission has been received!
Oops! Something went wrong while submitting the form.