Weekly Updates! - December 6, 2024

Weekly Updates! - December 6, 2024

Hey everyone! I hope everyone has had a great week. Here are some updates and reminders from the TBRS Community:

• • Help us launch the TBRS Drug Discovery and Repurposing Project
    • Our goal is to raise $30,000 by December 31 to launch this critical research and bring real solutions to families now
      • Your support will fund a drug discovery and repurposing project to identify existing FDA-approved or new drugs that could help TBRS patients.
      • Our dedicated research team is ready to evaluate these drugs and make them accessible to families in need.
    • Join Us! Every dollar helps us move closer to life-changing solutions.
      • Click here to donate by Dec 31!
• • REMINDER: The Power of Sharing Personal Stories and Wins!
    • As we prepare our annual report to showcase all that the TBRS Community has accomplished, we’re reminded of how important each family’s voice is in shaping our progress.
      • We’d love to include stories and personal wins from our patient and family community to celebrate your journeys and bring a heartfelt touch to our report.
      • Your experiences give life to our mission, inspire others, and highlight the strength of our community.
    • If you’re interested in sharing, please reach out by email to kit@tbrsyndrome.org - we’d be honored to include your story!
• • With giving season in full swing, here is a reminder of ways you can show your support!
    • Leave a lasting legacy with the Dorothy G. Hatton Legacy Society
      • Join the Dorothy G. Hatton Legacy Society, named in honor of a cherished TBRS grandma who was the first person to ever include the TBRS Community in her planned giving.
      • Legacy gifts play a crucial role in ensuring the long-term sustainability of the TBRS Community. These gifts allow us to:
        • Provide essential resources,
        • Support families affected by TBRS,
        • Advance critical research toward treatment development,
        • Expand our programs,
        • Increase our outreach, and
        • Offer hope to those living with TBRS.
      • There are financial and tax advantages for donors as well, including:
        • Estate Tax Reduction
        • Income Tax Benefits
        • Flexibility and Control
        • Enduring Legacy
      • Click here to learn how you can contribute!
    • Show your support as a TBRS GEM
      • Become a TBRS GEM (Giver Every Month)!
      • By becoming a recurring donor, you have the chance to make a significant impact in the lives of those who face TBRS by funding crucial research, providing vital resources, and ultimately, improving their quality
      • Over the course of a year:
        • $10 per month allows us to host our TBRS Social and Support Groups
        • $25 per month funds the collection of one patient sample to our biorepository
        • $50 per month can send a TBRS Cares Package to 12 families in crisis per year
        • $100 per month provides the resources to maintain our virtual programming
        • $250 per month pays for our TBRS Patient Registry platform for a year
        • $500 per month can create an iPSC line, a valuable research tool based on patient cells
      • As a TBRS GEM, you will be featured on our website and social media, have access to TBRS GEM exclusive member update meetings, and receive a 10% discount to any of our paid events.
      • Become a TBRS GEM here!

Thanks and I hope you have a great weekend!

Kit Church, CARE Manager