Weekly Updates! - January 9, 2026

Just a few quick updates and reminders this week:

‍

• Cabins are filling up - Registration TODAY for the 2026 TBRS Super Summit (and get a special gift)!
  
  • Cabins are quickly being filled for onsite stay at the 2026 TBRS Super Summit! Register today to guarantee your spot.
    
    • This year’s event will take place March 19–22 at the beautiful Morgan’s Wonderland Camp in San Antonio, Texas.
  • The Summit is our biggest gathering of the year, bringing together families, researchers, and clinicians to connect, learn, and work toward the future of TBRS care and research. From expert-led sessions to hands-on activities, it’s a weekend filled with knowledge, support, and lasting friendships.
    
    • Both in-person and virtual options are available, so everyone can take part—whether you’re joining us at the camp or tuning in from home.
  • Register by January 10th to receive a special gift in your welcome bag at the Summit!!
  • Click here for more information!

‍

• TBRS Community Office Hours 
  
  • What are Office Hours?
    
    • A casual, welcoming space to connect with the TBRS Community team
    • Join to ask questions, share ideas, or just listen in
  • This week’s theme: Citizen Health!
    
    • How themes work:
      
      • You’re welcome to join specifically to talk about the theme
      • You can also bring unrelated questions or topics — the theme is there to help spark conversation, not limit it
  • Click here to view the TBRS Calendar and the next date for office hours!
    
    • Every Monday at 9am EST and Thursday at 4pm EST

‍

Thanks! Please reach out to me with any questions at kit@tbrsyndrome.org. 

Kit Church, CARE Manager