Weekly Updates! - March 8, 2024

Hello everyone! Since we’re coming up on the 10th Anniversary of the discovery of TBRS, I have some related announcements this week:

• 10th Anniversary: Special Edition Newsletter
  • We will have a newsletter coming out next week in honor of the 10th Anniversary of the discovery of TBRS.
  • This newsletter will feature some new resources, an announcement about our new Development Director, and information on the TBRS Challenge.
    • As a reminder, here is the link to the TBRS Challenge page.
  • Be on the lookout for this newsletter over the weekend!
• TBRS Community Conferences - in Spain and France!
  • 2 TBRS Community conferences are being held this March:
    • Burgos, Spain - Friday, March 22 - Sunday, March 24, 2024
      • Cost: free
      • For more information, click here.
    • Nancy, France - Friday March 29, 2024
      • Cost: free
      • For more information, click here.
• Biorepository donations
  • The TBRS Community Biorepository is a collection of patient samples aimed at advancing research quickly while reducing patient burden of sample donation.
    • Many of you have already donated to this Biorepository, either at the TBRS Summit 2023 or at home!
  • If you were expecting a donation kit for the Biorepository and have not yet received information on this, please reach out to me at kit@tbrsyndrome.org
    • If you would like to donate, please fill out this short form.

Thank you, and I hope you have a great TBRS Awareness Month!Kit Church, Research Coordinator