Weekly Updates! - May 8, 2026

Hey all! I have a few quick updates this week:

• Celebrating Our 2026 TBRS Challenge Participants
  
  • We’re so excited to celebrate the amazing individuals and families taking part in this year’s TBRS Challenge! 
    
    • Each participant is helping raise awareness, build community, and support research.
    • Whether you’re walking, running, swimming, or creating your own challenge—your efforts truly matter and are helping move TBRS research forward.
  • Follow along, show your support, and learn more about our participants here: https://givebutter.com/2026TBRSChallenge
    
    • We are so grateful for everyone participating, supporting, and spreading the word—you are what makes this community so special 

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• REMINDER: Join TBRS Family Connect 
  
  • Reminder to join TBRS Family Connect—a private online space for families and individuals with TBRS to connect.
    
    • Ask questions, share your experiences, and learn from others who truly understand life with TBRS.
  • Whether you need advice, want to meet other families, or just need a place to vent—this is a safe and welcoming space for you.
  • Join Us Here: https://tbrsyndrome.org/tbrs-connect-signup 

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Thanks! Please reach out to me with any questions at kit@tbrsyndrome.org. Happy weekend!

Kit Minor, CARE Manager