Weekly Updates! - October 31, 2025

To those who celebrate, Happy Halloween!!

I have a few updates this week:

• EVENT: Halloween Social – October 19, 2024

• • • We are hosting a Halloween Social on Saturday, November 1 from 10am ET.
      • This meeting will be a fun opportunity for diagnosed individuals and families to play games and have fun!
    • All are welcome to attend. Halloween costumes are encouraged, but not required. Come ready to have some spooky fun!
      • Zoom link: https://us02web.zoom.us/j/83761619871
• Tired of repeating your story? Now there’s an easier way.

• • AI Advocate (beta) puts your medical records and personalized answers in one secure place—helping you understand your care, spot what matters, and prepare for what’s next.
  • Families who try AI Advocate before Nov 30 will automatically be entered into Citizen Health’s $5,000 Caregiver Recharge Giveaway.
  • Sign-up takes about 5 minutes
    • Unfortunately, Citizen Health is currently only able to pull records for families in the United States, but are working towards other countries in the future.

• REMINDER: Registration is Open for the 2026 TBRS Super Summit!

• • • We’re excited to announce that registration is now open for the 2026 TBRS Super Summit!
      • This year’s event will take place March 19–22 at the beautiful Morgan’s Wonderland Camp in San Antonio, Texas.
    • The Summit is our biggest gathering of the year, bringing together families, researchers, and clinicians to connect, learn, and work toward the future of TBRS care and research. From expert-led sessions to hands-on activities, it’s a weekend filled with knowledge, support, and lasting friendships.
      • Both in-person and virtual options are available, so everyone can take part—whether you’re joining us at the camp or tuning in from home.
    • Save the dates:
      • Family arrival: Thursday, March 19
      • Scientist/Researcher arrival: Wednesday, March 18
    • Stay tuned for more details about the schedule and speakers. We can’t wait to see you there!
    • Click here for more information!

Thanks! Please reach out to me with any questions at kit@tbrsyndrome.org. Happy weekend!

Kit Church, CARE Manager