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News & Updates

Stay connected to what’s happening across the TBRS Community.

This is your go-to spot for the latest news, research announcements, community stories, blog posts, press features, and event updates.Whether it’s scientific breakthroughs, family highlights, or upcoming programs, we’ll keep you in the loop.

New Family Welcome Packet - A Great Resource for the Community
2024-07-19

New Family Welcome Packet - A Great Resource for the Community

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New Position: Community and Research Engagement (CARE) Manager
2024-07-24

New Position: Community and Research Engagement (CARE) Manager

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Check out the OSA's new brochure!
2024-06-06

Check out the OSA's new brochure!

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New Publication Highlights Collaborative Efforts for Understanding Epilepsy in Overgrowth-Intellectual Disability Syndromes
2024-06-06

New Publication Highlights Collaborative Efforts for Understanding Epilepsy in Overgrowth-Intellectual Disability Syndromes

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Celebrate Rare Disease Day by joining the TBRS Exercise Challenge as a participant
2024-02-28

Celebrate Rare Disease Day by joining the TBRS Exercise Challenge as a participant

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2024 TBRS Exercise Challenge
1970-01-01

2024 TBRS Exercise Challenge

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New Family Meet-Ups -- Upcoming Dates!
2024-02-28

New Family Meet-Ups -- Upcoming Dates!

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Random Kindness for TBRS - Rare Disease Day 2024 and the 10th Anniversary of TBRS
2024-02-28

Random Kindness for TBRS - Rare Disease Day 2024 and the 10th Anniversary of TBRS

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